Josie, wearing a sun hat, jacket, and pink shoes, sitting in her beach stroller with balloon tires. This is my daughter, she has an ultra-rare disease called PLAN (pla2g6 associated neurodegeneration). You can find out more about her condition here:
https://nbiadisorders.org/about-nbia/plan
I'm promoting a public Facebook group for her here:
https://www.facebook.com/groups/sandcastles4josie
Other categories include:
Entourage, NBIA, Wheelchair, INAD, Hensinger head support collar, Disability, Handicap, sandcastles4josie, Sandcastles, Durable Medical Equipment, Neck brace, Leggero, Reach 16
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